Tag: disability

Sunshine of My Life (一路瞳行, Judy Chu, 2022)

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A young woman comes to a better understanding of her family and her relationship with it after a series of crises some more serious than others in Judy Chu’s semi-autobiographical drama, Sunshine of My Life (一路瞳行). More a coming-of-age tale than an exploration of the difficulties faced by those with disabilities in the recent past, Chu’s heartfelt film nevertheless stresses familial solidarity as the heroine comes to realise that her misplaced resentment is mostly teenage angst and that at the end of the day her parents just want her to be happy.

Yan (Karena Ng) was born to two parents who are each blind. A perfectly ordinary though dangerous accident that could easily happen to a sighted mother leaves a toddler Yan scalded and unkind relatives questioning the couple’s decision to have a child at all implying it is somehow irresponsible and that they are incapable of caring for her. Nevertheless, Yan’s mother Hung (Kara Wai) resolves to do everything she can to keep her daughter safe beginning with attaching bells to her so she has a better idea of where she is and what she’s doing at all times. This early incident does in one sense colour Hung’s parenting style, constantly questioning herself as to whether she’s a good mother and preoccupied with the judgement of others all of which later feeds into her teenage daughter’s resentment as the older Yan grows tired of feeling responsible for her parents’ care. 

As a child, Yan had helped her parents by reading out menus and describing the world she sees around her but as a high school student she resents having to rush home after school rather than hanging out with her friends and also seems to be ashamed of her parents’ disability never telling anyone about her family and instead claiming that her mother is ill in hospital. She tells her art teacher that she just wants to get out of Hong Kong and doesn’t care where she goes so long as it’s far away while later telling her no good rich kid boyfriend that she’s searching for “freedom”. On one level she feels intense guilt for leaving her parents behind as if she were abandoning them, worried that they really can’t manage without her, but also fears for her own future and feels trapped as if she’s being asked to sacrifice her own hopes and dreams to stay by her parents’ side forever.  

Yan is indeed a teenage girl and has a slightly self-centred way of looking at things, never quite stopping to appreciate how difficult her parents lives can be in a conservative society that is often unwilling to accommodate difference. When her classmates all mock and jeer at a poster advertising a star gazing event for the blind all she can do is smile politely, and at one point she even walks straight past Hung waiting for her outside the school gates perhaps on one level simply embarrassed to have her mother meet her as any teenage girl might be but also anxious to hide her existence from her boyfriend. After being arrested by the police for illegal street selling, Yan’s father Keung (Hugo Ng) gets a job as a masseuse but is later exploited by his employer who tries to force him to sign a new contract accepting a 20% pay cut while increasing the manager’s commission. Keung refuses and is fired but vows to fight for the other workers to end discrimination against the blind and ensure they enjoy the same labour rights as sighted workers. 

Faced with a series of crises from a brush with criminality to her boyfriend’s sudden absence and her father’s failing health, Yan is forced to reconsider her relationship with her parents. On witnessing Hung stand up for herself and take her father’s corner Yan realises that she might have underestimated her mother’s capability and what she took for dependency was more a general sense of warmth in receiving care that made her life easier. Tinged with ’90s nostalgia from the ubiquitous cassette tapes Hung uses to record precious moments to pagers and pinups, Chu’s warmhearted drama finds a mother and daughter coming to a better understanding of each other as they both learn to embrace independence and freedom if in a slightly different way than originally anticipated.

Sunshine of My Life screened as part of this year’s Five Flavours Film Festival and is available to stream in Poland until 4th December.

Original trailer (Traditional Chinese / English subtitles)

Just the Two of Us (二人ノ世界, Keita Fujimoto, 2020)

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“We’re just ordinary people” the heroine of Just the Two of Us (二人ノ世界, Futari no Sekai) eventually exclaims in exasperation with the often hostile world around her. Produced by Kaizo Hayashi as a project for students at the Kyoto University of the arts, Keita Fujimoto’s sometimes bleak social drama offers a less rosy view on disability in the contemporary society than has perhaps been seen in recent Japanese cinema as the twin protagonists each struggle against prejudice and preconceived notions of how disabled people should live while internalising a sense of shame and impossibility that leaves them with little hope for the future. 

Opening in darkness, the scene then shifts to bright sun light as a young woman, Hanae (Shiori Doi), is woken by a phone call informing her she has been unsuccessful in a recent job application. Meanwhile, Gohei (Motomi Makiguchi), an old man caring for his son Shunsaku (Masatoshi Nagase) who has been paralysed from the neck down since a motorbike accident some years previously, finds his latest attempt to hire a carer ending in failure, Shunsaku deliberately making obscene comments towards the earnest young woman leaving her so upset that she leaves in tears and does not return. After hearing Gohei discussing his problem on a local radio show, Hanae decides to apply for the job the only thing being that she herself is blind which is why she’s been having so much trouble trying to find employment. 

Gohei has his doubts, but after talking to the young woman and witnessing her take no notice of Shunsaku’s attempts to make her uncomfortable, he decides to take her on in part because she reminds him of his late wife and he instinctively feels that he can trust her. As we discover, that’s something all the more pressing to Gohei because not only is he finding it increasingly difficult to care for his son as he himself ages but is also suffering with a serious medical condition and worrying who will look after him once he’s gone. For all these reasons he places a heavier responsibility on Hanae than she had expected, showing her where the spare key is in case she needs to get in when he’s out and even handing over their passbooks and bank cards. A little shocked, Hanae asks him if that’s really necessary, how does he know she won’t just run off with them but he simply tells her that he knows she’s not the sort of person who would do something like that and indeed she isn’t. 

As she later reveals, Hanae has no family of her own repeatedly reminding Shunsaku that he was lucky to have parents that loved and cared for him as much as they did. She becomes in a sense a member of the family, Gohei telling hospital staff she is his daughter while later even Shunsaku claims to be her husband in order to make a point. Yet the arrangement is not one that all find suitable, Shunsaku’s snooty aunts instantly taking against Hanae on the grounds that they cannot believe a blind woman could care for a paralysed man while simultaneously attempting to chase Shunsaku out of his home he fears disguising their desire to get their hands on the inheritance as concern for his wellbeing. They continue to infantilise him, refusing his right to make his own decisions over his life even though he is a man in his 40s of entirely sound mind insisting he should be put away in a nursing home rather than allowed to live as independently as possible in a house which he owns. 

Tellingly Shunsaku had been reluctant to leave the house afraid of the stigma and judgement he may receive from others in an ableist society, a fear later borne out by their encounter with an extremely rude man while trying to enjoy a summer a festival. Hanae who had been partially sighted since birth and lost her sight entirely five years previously reassures him that she feels people staring at her all the time but has had to become used to it in order to carry on with her life, her courage and support beginning to give him the desire to begin living again yet the world continues to place various barriers in their way eventually removing all sense of hope and possibility that the decisions they’ve made for themselves will be accepted or that they could become a conventional family supporting each other. 

“How can we live without bothering others?” Hanae eventually snaps back at the snooty aunts, signalling perhaps a slightly problematic framing that leans into the idea that Hanae and Shunsaku are burdens and that their presence is never anything other than a nuisance to those around them rather than taking others to task for their refusal to accept disabled people as equals or to treat them with basic human empathy. The conclusion is further reinforced by the bittersweet ending which echoes the film’s title implying that the pair can stay together but only by accepting exile from mainstream society and retreating into a world of two. Nevertheless, Fujimoto’s often sensitive, elegantly shot drama has genuine poignancy even in its melancholy conclusion as the marginalised heroes find solace in each other in defiance of a hostile society.

Original trailer (no subtitles)

Josée (조제, Kim Jong-kwan, 2020)

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When Isshin Inudo’s adaptation of the 1984 short story by Seiko Tanabe Josée, The Tiger and The Fish was released back in 2003, it quickly gained popularity across Asia and is fondly remembered by many as a melancholy love story neatly anticipating the junai boom that would arrive a year later. Nevertheless, almost 20 years on the film’s depiction of disability might seem very of its time while its heavy focus on the male hero’s internal conflict realising that in the end he wasn’t strong enough to fight for love may also seem misplaced. Very loosely inspired by the same short story, Kim Jong-kwan’s Josée (조제) while still largely told from the hero’s point of view does its best to redress the balance in returning agency to the heroine as she resolves to live a freer and more independent life if still to a degree confined by an internal sense of ableism. 

As the film opens, Josée (Han Ji-min) is lying in the road having been thrown out of her electric wheelchair. Student Young-seok (Nam Joo-hyuk) comes to her rescue, grabbing a nearby stool while inspecting the chair only to discover the wheel is broken and the power is out. Thinking quickly he borrows a wheelbarrow from a storeowner and takes both her and the wheelchair back to her home where he’s treated to a meal but also endures Josée’s scorn, she feeling quite ambivalent thinking that she should repay his kindness but also not really wanting to engage with him. Young-seok meanwhile is somewhat captivated by her mystery, later helping her grandmother out after spotting her struggling with a heavy cabinet in the street and thereafter becoming a regular fixture in the young woman’s home. 

Unlike the earlier version, the reasons for Joseé’s largely self-imposed isolation are internal rather than to do with social stigma towards disability or a history of abuse. Nevertheless she harbours a degree of trauma owing to having been abandoned as a child and is reluctant to form close relationships with others which is one reason why she rebuffs Young-seok’s attempts at friendship believing he too would one day leave her while there is also a rather large age gap between them, Young-seok still a student in his early 20s while it appears Josée is at least 10 – 15 years older. Through Young-seok’s intervention Josée discovers that there are systems in place she could go to for support along with community organisations that are keen to help her live independently as an integrated member of society the only reason she had not found them before being her desire for isolation partly caused by the mistaken belief she is wanted by the police. 

Young-seok meanwhile despite his earnest desire to help her is still somewhat immature, naively asking his sometime college girlfriend insensitive questions about her rent and living arrangements while unable to understand the consequences of his actions in carrying on an affair with one of his professors and being exploited by another. Josée accuses him of pitying her which he perhaps does but is also drawn to her because of her sense of mystery discovering that little of what she says of herself is true, merely the expression of the escapist fantasies she uses to overcome the inertia of her life. The irony is that Young-seok is attracted to her precisely because of this quality of otherness and unknowability, while through forming a relationship with him she grows to know and love herself, finally accepting that she is worthy of love if also perhaps viewing herself as a burden as if she would trap Young-seok with her in world of isolation unfairly denying him the right to the fullness of the life. 

Because of her isolation Josée experiences the world differently, living vicariously through books travelling the world in spirit if not in body. Her marginalisation is compounded by her poverty, unable to afford the things that would make her life easier and unaware that there is help available because of her distrust of of authority figures born of her previous experiences which contributes to her desire for solitude. Yet through her relationship with Young-seok she begins to develop a sense of possibility, embracing her independence in driving an adapted car at the film’s conclusion while reconnecting with a childhood friend and his partner not to mention having a little cat to take care of at home. “I’m OK now, I’m not lonely” she offers, if a little sadly, romanticising the memory of love if not its actuality. Imbued with a deep sense of romantic melancholy, Kim’s richly textured drama nevertheless hands agency back to Josée who finally comes to love and accept herself through loving and being loved by another person seizing her independence to live a full and active life but ready to accept the help and support of others as she does so. 

Josée screens 14th November as part of this year’s London Korean Film Festival.

International trailer (English subtitles)

Awoke (복지식당, Jung Jae-ik & Seo Tae-soo, 2020)

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“Please let me live with dignity” the hero of Jung Jae-ik & Seo Tae-soo’s Awoke (복지식당, Bogji Sigdang) eventually pleads as a sole judge looks down on him from on high, advocating for himself but seemingly finding little support. Co-directed by Jung who is disabled himself and employing a mixed ability crew, Jung & Seo’s kafkaesque drama explores the vagaries of disabled life in the contemporary society in which there is still a degree of stigmatisation towards those with differing needs while the expanding welfare system also presents its own barriers preventing those with disabilities from leading full and fulfilling lives. 

This 34-year-old Jae-gi (Jo Min-sang) discovers when he suddenly becomes disabled after a traffic accident. As his mother died while he was in the hospital, he has only his cousin Eun-ji, who is a single mother to a teenage son, and an elderly landlord to look after him while it seems no one has fully explained the options he now has. His hospital roommate, Bong-su, seems to be an old hand, visited by a man in wheelchair, Byeong-ho whom he calls brother, who has evidently explained to him how to game the system which is why he is later rated level 2, the second most severe category of disability, despite being fully able to walk and perform everyday tasks with relative ease. Being an honest person, Jae-gi fully co-operates with the civil servant sent to assess his level of disability and as he is able to stand and make a few steps to transfer into a wheelchair independently he is put down as able to walk, and as the assessor is able to move his left arm which constantly tremors and has low functionality he is graded level 5 or “mildly disabled”. 

To anyone’s eyes, this is plainly ridiculous. Jae-gi needs an electric wheelchair in order to get around and can only manage basic every day tasks such as housework and laundry with assistance. He is also forced to move out of the flat his mother left him because it’s a walkup, meaning he has to rent an accessible room. He tries to apply for various schemes intended to help people like him so that he’d be able to use subsidised accessible taxi services and have access to a personal carer but is repeatedly told he doesn’t “qualify” because of his level five designation. Unable to claim for disability living allowance, Jae-gil wants to get a job but again on visiting a specialist service designed to help those with disabilities get into work finds himself falling between two stools. The first interviewer simply looks at him and explains he wants someone who can walk and lift heavy objects, which is incongruous with advertising jobs to people with physical disabilities. The second wanted to hire him right away only to rescind the offer on looking at his welfare card explaining her company only hires levels one to three. Byeong-ho, who happens to work there too, explains that’s because companies are given subsidies for hiring the “severely” disabled which on paper Jae-gil is not. 

Time and again, Jae-gil becomes the victim of officious bureaucracy. The services needed to help him exist, but he is prevented from using them because an over officious assessor was too literal with his form. He’s told that it’s difficult, perhaps impossible, to get one’s level changed, a claim which seems doubly unfair given that disability can of course change over time. Intensely vulnerable, he comes to over rely on Byeong-ho’s advice, little knowing that Byeong-ho is also exploiting him despite being aware that he has no money and is in danger of being evicted from his flat if he is not able to get his level changed to enable him to work, claim the assistance he is entitled to, and live a fulfilling independent life. 

Encouraged by Byeong-ho, Jae-gil is certain that he’s going to get his rating overturned, assuring his cousin there’s no need to sell his mother’s flat in which she is currently living after losing her house when her husband passed away from cancer because he’ll soon have a job and can pay the rent. Perhaps to a certain extent you can’t blame Byeong-ho for being the way he is given the way he has also experienced exploitation and discrimination not to mention violence at the hands of a father who couldn’t accept having a disabled son, but his almost sadistic glee in fleecing Jae-gil of the little he has is plainly unforgivable, reaching out in solidarity as one disabled person to another only to pass on his sense of oppression to someone even more vulnerable. Forced into a kafkaesque bureaucratic nightmare, all Jae-gil can do is repeatedly state his case only for those in positions of power to claim they are prevented from helping him because his card says level five despite the obvious evidence of their eyes. Nevertheless, through his traumatic experiences of betrayal and exploitation, he perhaps awakens to the injustice inherent in the contemporary society and is resolved to advocate for himself though the jury is it seems out on whether anyone is finally going to listen. 

Awoke screens 9th November as part of this year’s London Korean Film Festival.

Original trailer (English subtitles)